Rare disease management in general practice

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Description

In this episode:

  • Rare diseases together are not rare! Collectively they affect 1:12 Australians
  • Learn how to suspect and recognise a rare disease
  • We now have a single centre of excellence that is a pathway for referrals, education for all that will serve as a resource hub for patient support groups and a place dedicated to the holistic care of the patient
  • Learn about the government-funded Rare Awareness, Education, Support and Training (RArEST) project

 

Host: Dr David Lim, GP and Medical Educator

Total time: 35 mins

Guest: Dr Elizabeth Palmer, Clinical Geneticist

 

Recommended Resources:

 

If you are interested in learning more about RArEST, please contact:
Elizabeth.palmer@unsw.edu.au or project manager Nada, n.mirkovic@unsw.edu.au

 

Last Updated: 25 Nov, 2021

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Dr Elizabeth Palmer

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Dr Elizabeth Palmer

Clinical Geneticist; Sydney Children’s Hospitals Network (SCHN); Lecturer, University of New South Wales

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