In this episode:

• Why Ehlers-Danlos syndrome and hypermobility spectrum disorder are more common – and often missed
• The multi-system clues that can point to an underlying connective tissue disorder
• How early recognition and team-based care can change outcomes
• A healthcare professional’s role in diagnosis, pain management and advocacy
• Where to find trusted resources and referral pathways

Experts: Dr Jason Lam, Specialist General Practitioner
               Leanne Scown, Sports & Exercise Physiotherapist

Host: Dr Rebecca Overton, GP and Medical Educator

Total time: 38 mins

Recommended resource:

• CTDNA – Connective Tissue Disorders Network Australia
• CTDNA – HSD/hEDS
• Ehlers-Danlos Syndromes (EDS) (Group of conditions) – Rare Awareness Rare Education Portal
• CTDNA Flyer
• Pain management in the Ehlers-Danlos syndromes
• Dr Jason Lam
• Leanne Scown
• EDS Society ECHO (educational series for medical and allied health practitioners)
• hEDS clinical criteria
• American Journal of Genetics: EDS and Chronic Pain News & Inf
• Dr Megan Thomas’s resource on her website
• AJGP: Hypermobility syndromes in children and adolescents: Assessment, diagnosis and multidisciplinary management
• AGA Clinical Practice Update on GI Manifestations and Autonomic or Immune Dysfunction in Hypermobile Ehlers-Danlos Syndrome: Expert Review
• Canadian Cardiovascular Society Position Statement on Postural Orthostatic Tachycardia Syndrome (POTS) and Related Disorders of Chronic Orthostatic Intolerance
• EDS society paediatric framework
• EDS society health professionals directory
• EDS society Core Networks in australia – groups of clinicians who have been approved by the EDS society
• Podcast on neurodivergence and hypermobility
• Hypermobile GPDU- facebook group for GPs in the space
• The Spider